Raising Awareness About Tarlov Cyst Disease

If you do not know all three major pathologies that exist in this one MRI image, then you might not understand the amount of pain and the nature of the pain that this patient is in.

And if you were taught that Tarlov Cysts do not cause symptoms, you would see two of the three pathologies in this image as "incidental findings, and still not believe the amount of pain and the nature of the pain that this patient is describing.

I know how much pain this patient is in, and I know the often bizarre and humiliating nature of the symptoms that this patient is experiencing. And I know that doctors and nurses are not trained in Tarlov Cyst Disease; but that they are trained to be ever on the alert for people who fake back pain and other symptoms to try to get drugs or money.

And I know that without training ALL doctors and nurses about Tarlov Cyst Disease before they are licensed , the psychological trauma that I had to endure for four years before my Tarlov Cysts were revealed to me; and the even much worse psychological torture that began almost immediately after I was diagnosed with Tarlov Cyst Disease ... none of this will never end.

I know that patients are not allowed to educate doctors and nurses about the rare disease that we have that you've never heard of in medical school. I know that if you are among those rare students who was taught about Tarlov Cyst Disease in medical school, you were probably taught that they are "just fluid filled sacs" and that they are "incidental findings" and "usually asymptomatic. I know what you were taught about Tarlov Cyst Disease in medical school if you were taught anything at all.

And I know that it is wrong. I know this because I am the patient that you see in that MRI image. I have herniated discs and multiple apparently small Tarlov Cysts.

And I know that after almost seven years of trying to get medical care for what turned out to be the combination of herniated discs and Tarlov Cysts together -- a condition known as "Double-Crush syndrome" -- that I was told to kill myself by my mental health counselor at The New Haven Seventh-Day Adventist Church, who also worked as a licensed mental health counselor and chaplain at the Seventh-Day Adventist hospital in Johnson County, KS where I was misdiagnosed negligently for four years before being even more abusively misdiagnosed for the next nine years, to the point that the church and the hospital had me committed to a mental institution in part upon their stated belief that Tarlov Cyst Disease does not cause symptoms and all of my medical symptoms are the result of delusions.

I know that the failure to train medical and mental health staff is not just a personal medical malpractice issue. It is retaliation against a whistleblower who threatened to expose the entire Tarlov Cyst conspiracy if my church-based hospital would not even confess.

It will never end for me.

And it will never end for three million of my Cysters with Symptomatic Tarlov Cyst Disease in The United States of America, or for the more than fifty million STCD sufferers worldwide.

It will never end with Federal Civil Rights and Human Rights protections for people with Tarlov Cyst Disease.

It is my humble hope that this website and my personal experience in fighting for the rights of people to be protected against predatory and retaliatory health care and insurance practices for the last thirteen years will, somehow result in 50 million miracles, in the coming days.

Those 50 million miracles do not necessarily need to be miraculous cures from God. They could be 50 million times that doctors believe their patients, check them for Tarlov Cyst Disease, and recommend or provide treatment...instead of treating us like criminals because of what they did not learn in school.